Seven years ago I discovered I have a rare genetic condition that causes spontaneous muscle breakdown called rhabdomyolysis. Since then, I have been on a diagnostic odyssey that has led me through hospitalizations, medical leave, and ultimately to apply for the Undiagnosed Disease Network in search of a diagnosis.
I am a writer by trade, and I moonlight as a multimedia artist. My goal is to use my storytelling skills to make others in similar situations feel less alone.
Your support—whether as a one-time donation, subscription, kind words, or spreading the message—will help further my mission, subsidize my career, pay off medical debt, and keep me caffeinated on my journey.
she is a living, dancing flame. her zest for life is blinding and humbling. i wish her all of the goodness that life can provide.
the shirt designs are very cool.