Social needs Vs. Disability. Observation ...

Social needs Vs. Disability. Observations and suggestions

Nov 07, 2022

Balancing social needs and chronic illness and chronic pain and chronic fatigue and neurodivergence has proved to be a task that I'm not able to currently manage. I am working on trying to build new ways to approach filling this need and I have a few observations.

To start with disabled people don't stop needing social fulfillment when they become disabled or more disabled than they had been previously when a new disability is added or a existing one changes. They do however have a much harder time accessing society.

For me, many people are exhausting because being around them requires masking around them and managing them. I spent years trying to figure out why some people were draining and others weren't and it was masking this entire time. It's something I no longer have the energy to do. I can not begin to describe how exhausting and heavy a burden masking around people is.

I have been isolated for years now because of the amount of caution that was necessary to protect my health. I am even more isolated now while I live through the consequences of someone not taking those necessary precautions seriously enough. I just don't have the energy to do things with people or be useful/entertaining enough for them to seek out spending time with me.

On rare days I feel up to socializing the pool of people I can think of whose interactions I have don't have to manage carefully or that I don't have to mask around is very very small.

If you want to be a better ally and friend to your disabled friends show up for them where they are able to meet you.

If you want to be a better ally and friend to your ND friends be a safe person for them to be their authentic selves around.

If you're one of the very rare mythical unicorns of a person who already does this - thank you I love you for it.

Enjoy this post?

Buy Gwen a book

More from Gwen