In this episode, I speak to Alison Cossons, a former occupational therapist, who has hypermobile Ehlers Danlos syndrome, which was evident from birth however she was only diagnosed in her late 30s alongside her young son. Alison is a regular Nordic Walker with Nordic4 and attends classes run by both Katie Atkins and Emma Webb.
Alison mentions this YouTube clip in her interview: https://youtu.be/YxfkWAPMdg8 Jason Perry - Practical Pacing and Fatigue Management within the Ehlers Danlos Society YouTube account.
Further Resources
The Ehlers Danlos Society - www.ehlers-danlos.com
Medical journal article about hEDS, written by members of the International Consortium on Ehlers-Danlos syndromes and hypermobility spectrum disorders: Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome Type III and Ehlers-Danlos syndrome hypermobility type): Clinical description and natural history
Ehlers-Danlos Support UK https://www.ehlers-danlos.org/.
HMSA - Hypermobility Syndrome Association https://www.hypermobility.org/.
Alison’s family will be forever grateful to Professor Rodney Grahame (https://www.ehlers-danlos.com/rodney-grahame/ ) who made these diagnoses for them, and later for Alison’s daughter. Alison and her family continue to receive online and hydrotherapy physiotherapy from Rachel Lewis (www.physio-hydro.com) who has known Alison following the birth of Alison’s son.
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I'm Mary Tweed, a British Nordic Walking instructor with Nordic Walking East Anglia. If you wish to share your story, do get in touch by emailing [email protected]
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